Note to Politicians: Stop Being So Self-Centered About Medical Research Funding

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Steve Benen mentions one of my pet peeves today: politicians who want to cut spending on everything except for research on one particular disease that happens to affect them personally. A couple of years ago, for example, Sen. Mark Kirk suddenly became interested in Medicaid’s approach to treating strokes after he himself suffered a stroke. The latest example is Jeb Bush, whose mother-in-law has Alzheimer’s. I suppose you can guess what’s coming next. Here’s Jeb in a letter he sent to Maria Shriver:

I have gotten lots of emails based on my comments regarding Alzheimer’s and dementia at a town hall meeting in New Hampshire. It is not the first time I have spoken about this disease. I have done so regularly.

Here is what I believe:

We need to increase funding to find a cure. We need to reform FDA [regulations] to accelerate the approval process for drug and device approval at a much lower cost. We need to find more community based solutions for care.

As Benen points out, Bush vetoed a bunch of bills that would have assisted Alzheimer’s patients when he was governor of Florida. I guess that’s changed now that he actually knows someone with the disease. However, it doesn’t seem to have affected his attitude toward any other kind of medical research spending.

I’m not even sure what to call this syndrome, but it’s mighty common. It’s also wildly inappropriate. If Jeb wants to personally start a charity that helps fund Alzheimer’s research, that’s great. But if he’s running for president, he should be concerned with medical research for everyone. I mean, where’s the billion dollars that I’d like to see invested in multiple myeloma research? Huh?

Presidents and members of Congress represent the country, not their own families. They should get straight on the fact that if their pet disease is being underfunded, then maybe a lot of other diseases are being underfunded too. It shouldn’t take a family member getting sick to get them to figure that out.

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WHO DOESN’T LOVE A POSITIVE STORY—OR TWO?

“Great journalism really does make a difference in this world: it can even save kids.”

That’s what a civil rights lawyer wrote to Julia Lurie, the day after her major investigation into a psychiatric hospital chain that uses foster children as “cash cows” published, letting her know he was using her findings that same day in a hearing to keep a child out of one of the facilities we investigated.

That’s awesome. As is the fact that Julia, who spent a full year reporting this challenging story, promptly heard from a Senate committee that will use her work in their own investigation of Universal Health Services. There’s no doubt her revelations will continue to have a big impact in the months and years to come.

Like another story about Mother Jones’ real-world impact.

This one, a multiyear investigation, published in 2021, exposed conditions in sugar work camps in the Dominican Republic owned by Central Romana—the conglomerate behind brands like C&H and Domino, whose product ends up in our Hershey bars and other sweets. A year ago, the Biden administration banned sugar imports from Central Romana. And just recently, we learned of a previously undisclosed investigation from the Department of Homeland Security, looking into working conditions at Central Romana. How big of a deal is this?

“This could be the first time a corporation would be held criminally liable for forced labor in their own supply chains,” according to a retired special agent we talked to.

Wow.

And it is only because Mother Jones is funded primarily by donations from readers that we can mount ambitious, yearlong—or more—investigations like these two stories that are making waves.

About that: It’s unfathomably hard in the news business right now, and we came up about $28,000 short during our recent fall fundraising campaign. We simply have to make that up soon to avoid falling further behind than can be made up for, or needing to somehow trim $1 million from our budget, like happened last year.

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